Capacity Building Programme for Patient Associations

Welcome to the Capacity Building Programme for Patient Associations!

We are delighted to host you at this half-day capacitation building programme for patient’s associations. Our goal is to provide you an excellent opportunity to empower and enhance the capabilities of patient associations dedicated to diseases caused by protein alterations, including neurodegenerative and neuromuscular diseases. We are honoured to host distinguished speakers from EuroAtaxia and Ataxia-UK, who will share their invaluable insights on public and private funding, involvement in research, communication and dissemination strategies, outreach initiatives, and the crucial role of volunteering.

This event is exclusive for national patient’s associations.